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Disability Data in Humanitarian Action

Humanity & Inclusion is working to improve the availability of quality data on persons with disabilities and increase its use by humanitarian organisations.

A person with disabilities in Zaatari refugee camp, Jordan

Zaatari refugee camp, Jordan. | © Bas Bogaerts/HI

From July 2016 to March 2019, Humanity & Inclusion is running a project to improve data collection on persons with disabilities in humanitarian crises. As part of this project, the Washington Group Questions (WGQs) were tested and assessed for use in humanitarian response contexts and the findings were used to develop learning on the use of the WGQs by humanitarian actors.

Background

What is the problem?

  • Humanitarian actors lack information and knowledge about available or appropriate tools to collect disability data. They often use binary 'yes/no' questions, such as “do you have a disability or medical condition”, which lead to underreporting.
  • Humanitarian actors do not know how many persons with disabilities are affected in a given crisis.
  • Without knowing the number of persons with disabilities, humanitarian actors are not equipped to identify and address the needs of persons with disabilities, or design and implement inclusive projects.

The Washington Group on Disability Statistics

The Washington Group on Disability Statistics was established in 2001 under the UN Statistical Commission. Its goal is to develop and test tools to collect internationally comparable disability statistics, and to help actors better identify persons with disabilities.

The WGQs original purpose is to generate reliable and comparable data on persons with disabilities during national level data collection exercises. In humanitarian action, the WGQs can be used to measure access rates of persons with disabilities to humanitarian programmes and services.

► Factsheet - Collecting data in humanitarian action using the WGQs (pdf, 159 KB)

In the initial stage of the project, Humanity & Inclusion piloted the use of the Washington Group Short Set of questions in humanitarian settings with key humanitarian actors.

Six questions on Short Set

 

The project - from evidence to action

Funding and partners

The Disability Statistics in Humanitarian Action project was funded with UK aid from the UK government.

As part of its Disability Strategy 2018-2023 (pdf, 1 MB), the UK Department of International Development (DFID) aims to strengthen disability inclusion in policies and programmes across many sectors and levels. DFID has made a commitment to promote the routine, systematic collection and use of disaggregated data using tested tools such as the WGQs, and this project is contributing to achieving this goal.

An Advisory Steering Group guides, supports and promotes the project throughout all of its phases. This group involves senior headquarters representation from key international humanitarian organisations, United Nations agencies, the Washington Group on Disability Statistics, global humanitarian networks, international Disabled People’s Organisations, international Non-Governmental Organisations, and DFID. Meetings take place quarterly to review progress and discuss next steps.

Humanity & Inclusion leads the project in partnership with the Washington Group on Disability Statistics and the International Disability Alliance (IDA).

Washington Group logoIDA logo

Methodology

  1. Implement an action-research to test and assess of the use of the WGQs in humanitarian action in Jordan, the Democratic Republic of Congo and the Philippines.
  2. Create a learning toolkit designed specifically for humanitarian actors using the results of the action-research. Use the results of the action research to create learning materials and guidance designed specifically for humanitarian actors.
  3. Disseminate the action-research findings and learning toolkit, advocate for the use of the WGQs in humanitarian action where appropriate, and build capacity of humanitarian actors using the learning toolkit.

► Infographic: Project overview (pdf, 349 KB)

 

Action-research

The action-research aimed to:

  1. Understand how the WGQs performed in different humanitarian settings and sectors of intervention to identify persons with disabilities.
  2. Identify the process necessary for humanitarian actors to collect useful and quality data using the WGQs.

The action-research was implemented with humanitarian actors working in different sectors and humanitarian contexts, to integrate the WGQs in their existing practices.

Humanity & Inclusion and Leonard Cheshire collaboratively wrote a summary review (available below) which includes all the findings from the action-research.

 

Learning toolkit on the use of the WGQs in humanitarian action

Collecting Data for the Inclusion of Persons with disabilities in Humanitarian Action – The Application of the WGQs

59 staff from 29 different organisations working in 22 different countries were consulted to inform the development of the learning toolkit. Combined with the findings from the action-research, this feedback has informed what materials were to be developed, for what audiences, and in what priority.

Specific focus has been given to the development of open source materials that are accessible with screen readers, on mobiles, and in hard to reach locations. Subject matter experts have supported the development of the content, which has since been tested across 13 countries by 9 organisations.

Learning Toolkit

► E-Learning: Collecting Data for the Inclusion of Persons with Disabilities in Humanitarian Action – The Application of the WGQs
(Available in French and Arabic in March 2019)

This 2-hour course has been designed to support humanitarian programme staff understand, plan for and use the WGQs to identify persons with disabilities in humanitarian action. With case studies, practical examples and a wealth of supporting resources, the e-learning is an essential entry point for all programme staff interested in understanding more about how to use the WGQs.

The e-learning is available on:

Organisations interested to host the e-learning internally are welcome to contact us.


► Training pack for enumerators using the WGQs in humanitarian action (zip, 16.6 MB)

Developed with RedR UK, this training pack provides guidance, session plans and activities to deliver training to enumerators on using the WGQs in humanitarian action. The package has been designed to be adapted to the audience as necessary.


Supporting resources

The following supporting resources have been developed to support the e-learning and training pack.

► Flowchart - Planning the use of WGQs in Humanitarian Action (web version)

► How to ask the WGQs - Do’s and Don’ts (pdf, 192 KB)

► Planning checklist - Using the WGQs in Humanitarian Action (pdf, 154 KB)

► WGQs - Frequently asked questions (pdf, 133 KB)

Trainings, workshops & webinars

► IDA Disability Data Advocacy Working Group: Activities for 2019
Webpage listing a planned series of webinars for 2019.

► IDA Disability Data Advocacy Working Group - Webinar 31st January 2019 (recorded version)
Data on persons with disabilities in humanitarian settings. Additional resources related to this webinar are available in the Working Group January newsletter.

► Technical Workshop on Collecting Data on Persons with Disabilities in Humanitarian Contexts
New York, 11th - 12th December 2017. Download the Workshop Report (pdf, 3.41 MB)

► How to join the Disability Data Advocacy Working Group listserv (pdf, 326 KB)
Follow these instructions to receive updates from the Working Group.

Latest news

► Feedback: The challenge and promise of disability disaggregated data in humanitarian and developing settings
HI Advocacy blog post, 29th October 2018.

► 1 in 5 Syrian refugees has a disability, new survey reveals
A new study by HI and iMMAP shows that much more can be done to ensure the inclusion of people with disabilities in humanitarian responses. 19th September 2018

► Ensuring everyone counts when disaster strikes: Sharing early learning from UK aid funded project on disability data in humanitarian contexts
Blog post with DFID Inclusive, 6th November 2017.

► Registering refugees with disabilities in refugee settings in Jordan
Blog post with BOND, 20th June 2017.

 

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Get in touch

For more information about the Disability Statistics project, please email the Project Co-ordinator, Pauline Thivillier:
p.thivillier[at]hi.org 
or call our UK office on:
+44 (0)870 774 3737.


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UK activities
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UK activities

Humanity & Inclusion UK supports the organisation's programmes worldwide, by raising funds, influencing policy, and providing technical support.

The UK Emergency Medical Team
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The UK Emergency Medical Team

The UK Emergency Medical Team (UKEMT) is the front line of the UK’s response to a humanitarian crisis overseas, such as an earthquake or tsunami. Since 2013, Humanity & Inclusion has been working to integrate rehabilitation into the UKEMT.

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Countries we work in

Humanity & Inclusion works across the world in countries affected by poverty, conflict, and disaster.